The Reality of Rett Syndrome
Sharing a guest post by my friend, Lisa. Her daughter, Lily lives with Rett Syndrome, a very rare condition that predominantly affects girls. This mom & daughter duo are real fighters! Have you participated in the Facebook challenge where you compare your first profile pic to your most current one? My first picture was of Lily and me. In this picture she was 3 months old. We spent a little over a month in Hawaii swimming and walking all over the island of Oahu. Life was sublime. Little did I know then that our life was going to change in ways that I could not fathom. Lily was diagnosed with Rett Syndrome a severe neurological disorder that robs girls of their ability to walk, talk and have purposeful use of their hands along with a myriad of other challenges. Lily has always been a fighter. We almost lost her when I had to be rushed in for an emergency C-section. She wasn’t breathing and was in the NIC ICU for the first few days of her life. H...